Right I think I was getting so down as I was letting everything get on top of me and quiet simply I was forgetting to drink water. Stupid me
I had a good chat with a counsellor and she suggested I should make myself more of a priority in my life ... so I went and booked a massage .. lovely.
I feel much improved now.. The rhuematologist has put me on another dose of steroids for 6 weeks to see if it reduces my symptoms there is a chance that the methotrexate has not fully loaded up in my system yet. Only on the steroids 2 days now no improvement with the finger. But mentally I'm much improved .. god I love steroids effects on me .. so much more energy only on 10mg for two weeks then down to 5mg which has little or no effect sigh. If when I come of this dose of steroids the pain has not improved my methortresate dose (15mg) may need to be increased.
I'm curious to see if the energy problem is related to the inflamitory nature of Psoratic arthritis. Would make sense I have food allergies and they are autoimmune ... I hope I can nip this all in the bud soon.
The idea to be on the steroids was so I could sit my piano exam ( it is being rescheduled) I'm not sure I'll be able to do that :( ! ah well
Laters .. so much work to do :D
Tuesday, November 15, 2011
Tuesday, November 8, 2011
PA Update 08/11/2011
Okay updates .... its now 08/11/2011
I've come off my second tapered dose of steroids .. that was hard. I really did not like the change in me. Going from full of energy to zonked.
My meds have stopped working. My finger is sore again I feel it is because I'm taking alkeseltzers to settle my tummy, but the registrar didn't agree suppose I'll have to wait until friday to find out.
I've also become quiet down .. real down like staring in to a mirror crying for no reason down .. I'm fine when there are people around me but when I'm alone I get anxious and upset. this is not like me at all. I've arranged to see a counsellor to try and lift some of the weight off. Right now I don't feel like I'm carrying any weight .. but ... I've been EXTREMELY tired all week. Full on yawning through out the day .. accidentally drove on the wrong side of the road .. in a car park and underground easy to get confused .. still freaked me out. I've been eating a lot of comfort food and putting on weight.
I hope I'll be coming off the methotrexate and this time I will have a list of questions for the consultant I won't let her throw me out after 5 mins.
1. Can I come off Methotrexate how long will it take to get out of my system
2. Am I allowed to drink at all on Methotrexate??
3. What are the alternatives ??
4. Will physiotherapy help ??
5. With other meds what are the common side effects I should look out for ??
6. Does she know where I could get wrist supports and I dunno a neoprene seath to keep my finger warm.
7. Is there any chance i can go on steroids long term .. ( I'd love that but the side effects are a right bollock !!)
these are the questions at the mo I will work on more.
I've also been attending the living well with arthritis course. I'm not sure if its just that the people running it are just used to dealing with old people but they can on ocassion come across as really condesending. .. I feel like saying the arthritis is in my finger not my brain. Other wise I like the course but a lot of people stopped coming after the first week. I wonder why and what could be done to keep them envolved. It is great to meet people with similar problems as me It puts my issues in to perspective .... I have missed two nights unfortunately.
oh I found a really cool blog:
http://www.rheumatoidarthritisguy.com/
Must get back to work
Cheers
I've come off my second tapered dose of steroids .. that was hard. I really did not like the change in me. Going from full of energy to zonked.
My meds have stopped working. My finger is sore again I feel it is because I'm taking alkeseltzers to settle my tummy, but the registrar didn't agree suppose I'll have to wait until friday to find out.
I've also become quiet down .. real down like staring in to a mirror crying for no reason down .. I'm fine when there are people around me but when I'm alone I get anxious and upset. this is not like me at all. I've arranged to see a counsellor to try and lift some of the weight off. Right now I don't feel like I'm carrying any weight .. but ... I've been EXTREMELY tired all week. Full on yawning through out the day .. accidentally drove on the wrong side of the road .. in a car park and underground easy to get confused .. still freaked me out. I've been eating a lot of comfort food and putting on weight.
I hope I'll be coming off the methotrexate and this time I will have a list of questions for the consultant I won't let her throw me out after 5 mins.
1. Can I come off Methotrexate how long will it take to get out of my system
2. Am I allowed to drink at all on Methotrexate??
3. What are the alternatives ??
4. Will physiotherapy help ??
5. With other meds what are the common side effects I should look out for ??
6. Does she know where I could get wrist supports and I dunno a neoprene seath to keep my finger warm.
7. Is there any chance i can go on steroids long term .. ( I'd love that but the side effects are a right bollock !!)
these are the questions at the mo I will work on more.
I've also been attending the living well with arthritis course. I'm not sure if its just that the people running it are just used to dealing with old people but they can on ocassion come across as really condesending. .. I feel like saying the arthritis is in my finger not my brain. Other wise I like the course but a lot of people stopped coming after the first week. I wonder why and what could be done to keep them envolved. It is great to meet people with similar problems as me It puts my issues in to perspective .... I have missed two nights unfortunately.
oh I found a really cool blog:
http://www.rheumatoidarthritisguy.com/
Must get back to work
Cheers
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