Okay updates .... its now 08/11/2011
I've come off my second tapered dose of steroids .. that was hard. I really did not like the change in me. Going from full of energy to zonked.
My meds have stopped working. My finger is sore again I feel it is because I'm taking alkeseltzers to settle my tummy, but the registrar didn't agree suppose I'll have to wait until friday to find out.
I've also become quiet down .. real down like staring in to a mirror crying for no reason down .. I'm fine when there are people around me but when I'm alone I get anxious and upset. this is not like me at all. I've arranged to see a counsellor to try and lift some of the weight off. Right now I don't feel like I'm carrying any weight .. but ... I've been EXTREMELY tired all week. Full on yawning through out the day .. accidentally drove on the wrong side of the road .. in a car park and underground easy to get confused .. still freaked me out. I've been eating a lot of comfort food and putting on weight.
I hope I'll be coming off the methotrexate and this time I will have a list of questions for the consultant I won't let her throw me out after 5 mins.
1. Can I come off Methotrexate how long will it take to get out of my system
2. Am I allowed to drink at all on Methotrexate??
3. What are the alternatives ??
4. Will physiotherapy help ??
5. With other meds what are the common side effects I should look out for ??
6. Does she know where I could get wrist supports and I dunno a neoprene seath to keep my finger warm.
7. Is there any chance i can go on steroids long term .. ( I'd love that but the side effects are a right bollock !!)
these are the questions at the mo I will work on more.
I've also been attending the living well with arthritis course. I'm not sure if its just that the people running it are just used to dealing with old people but they can on ocassion come across as really condesending. .. I feel like saying the arthritis is in my finger not my brain. Other wise I like the course but a lot of people stopped coming after the first week. I wonder why and what could be done to keep them envolved. It is great to meet people with similar problems as me It puts my issues in to perspective .... I have missed two nights unfortunately.
oh I found a really cool blog:
http://www.rheumatoidarthritisguy.com/
Must get back to work
Cheers
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